If you saw us out and about or at church over the weekend, you may have wondered why Hazel wasn't wearing her new helmet. Well, we were having problems with the new helmet (ridiculous, right?) so we took it off until the physical therapist could come on Monday to help assess the current situation. She hadn't yet seen the new helmet and after helping us work out our kinks, it was determined that this helmet is indeed a significant improvement over the last one and we should hopefully be able to move forward now (and maybe I can quit dangling from the end of my rope). Phew!
We are working our way up in hours this week and by Thursday I think we'll finally be back to making an attempt at wearing the helmet 23 out of 24 hours. We only accomplished that for 2 days with the first helmet and haven't made it to that point yet with the second helmet.
I feel like we have wasted a lot of time while Hazel's head is still its softest, and I have missed a lot of work, and so far we haven't accomplished anything. The first couple weeks with the original helmet, I could see a positive change, but it looks to me like we've lost that now, maybe due to the break time waiting for the new helmet, plus the fact that she didn't wear it for a couple of days. But I think - I hope - maybe we are about to get on track and cut the drama and get this thing going.
So that's the general update...
I promise I'll post some pictures or blog about something other than the helmet soon!
3 hours ago